The Advocacy Lab

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The Advocacy Lab Podcast Cover
CML Society of Canada

The Advocacy Lab

with Cheryl-Anne Simoneau

Where patients don’t just survive disease — they change the science and policies around it.

About The Advocacy Lab

A Platform Built by Patients, for Everyone

The Advocacy Lab is more than a podcast — it’s a community space where patient organizations across Canada and around the world can share their stories, strategies, and hard-won lessons.

Whether you’re navigating a healthcare system, launching an awareness campaign, pioneering a policy change, or using technology to transform your own care — this is your space to be heard. Participation is completely free.


Episodes

Latest Episodes

Real stories. Real advocates. Real impact.

Episode 01

From Patient Petition to PhD: Changing Access & Advancing Science in CML

When treatment options for chronic myeloid leukemia were running out, Suzan refused to accept that silence was the answer. She helped launch a patient petition that changed access — and then went on to earn a PhD studying resistance in leukemia.

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Dr. Suzan McNamara Scientific Advisor, The CML Society of Canada
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Episode 02

AI, Persistence & Lived Experience: Advocating for Your Own Diagnosis

What happens when a patient uses AI to advocate for herself — and it changes the course of her diagnosis? Alvina Nadeem, an ovarian cancer survivor, shows how technology, persistence, and lived experience can intersect in powerful ways.

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Alvina Nadeem Ovarian Cancer Survivor & Patient Advocate
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Episode 03

En conversation avec Teresa Norris — Tout ce que vous devez savoir sur le VPH

Le vaccin contre le VPH peut prévenir au moins 9 types de cancer — ce qui en fait l’un des outils de prévention du cancer les plus puissants dont nous disposons. Le VPH n’est pas seulement une question de santé féminine — les hommes doivent aussi se faire vacciner, et il n’y a pas de limite d’âge supérieure pour la vaccination.

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Teresa Norris Spécialiste en santé sexuelle, Présidente & Fondatrice de HPV Global Action & Présidente de la Coalition Priorité Cancer du Québec
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Episode 04

In Conversation with Teresa Norris — Everything You Need to Know About HPV

The HPV vaccine can prevent at least 9 types of cancer — making it one of the most powerful cancer prevention tools we have. HPV is not just a women’s issue — men need the vaccine too, and there is no upper age limit for getting vaccinated. Oropharyngeal cancers in men are now surpassing cervical cancer cases in women — and there is no test available for men to detect HPV.

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Teresa Norris Sexual Health Specialist, President & Founder of HPV Global Action & President of the Coalition Priorité Cancer du Québec
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Open to All — No Cost

Share Your Story on The Advocacy Lab

We invite patient organizations in Canada and around the world to use this space to tell their stories, share tips and tricks, and pass on the lessons they’ve learned. There is no cost to participate — just your voice and your experience.

Tips & Tricks Lessons Learned Policy Wins Patient Stories Research & Science Advocacy Campaigns Technology in Care
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