Like CML, Myelofibrosis (MF) is another rare disorder in the family of Myeloproliferative Neoplasms (MPN’s). The CML Society of Canada is expanding our reach to provide support to patients with MF and to help them find a voice of their own, while being supported with our voices. The incidence of MF in Canada is very rare,...Read More

 Overview Myelofibrosis (MF) is a life-threatening blood cancer associated with progressive, debilitating symptoms that can severely impact quality of life and shorten survival.[i],[ii]  MF is characterized by bone marrow scarring (fibrosis), an enlarged spleen (splenomegaly) and debilitating consequences, including fatigue, fever, night sweats, itchy skin, bone pain, abdominal pain or discomfort, and weight loss.[iii],[iv] MF...Read More

We are a strong team of innovative, strategically minded and knowledgeable patients.  We have used our talents to create some innovative tools and awareness campaigns to improve the lives of our fellow CML patients. To read the story behind some of our most creative ideas, click on the links below: Awareness – CML Awareness Day...Read More

Today, Health Canada took an important step forward in an effort to bring a National Pharmacare program to all Canadians.  The long awaited for, and necessary changes, to the PMPRB were announced.   We are pleased to have worked with a core group of independent patient advocates to support the government’s changes to  the PMPRB. NEWS...Read More

Polymerase Chain Reaction (PCR) It is a scientific technique from the branch of molecular biology that allows us to amplify DNA segments.  We think it is much easier if you think of it as the specialized “photocopier” of your DNA. Polymerase – it is an enzyme.  It’s primary function is to polymerize new DNA or...Read More

This study concerns quality of life in patients with myelofibrosis. Information about how myelofibrosis and its treatment affect the lives of patients is important to help doctors and patients make decisions about treatment. This study is being conducted by Dr. Murray Krahn, a scientist and professor at the University of Toronto and a general internist...Read More

From Time to time patients are asked to participate in market research for which there is remuneration. We fielded many questions from patients asking us what happens with this information and whether or not they should participate. Below is a link to a document we have created that should provide you with some guidance and...Read More

Satellite Symposium – December 7, 2012 Chronic Myeloid Leukemia (CML): Evaluating the Evolving Therapeutic Landscape to Improve Outcomes Speakers:             Neil Shah, MD, PhD, University of California – San Francisco School of Medicine, San Francisco, CA, Paul J. Shami, MD, The University of Utah and Huntsman Cancer Institute, Salt Lake City, UT , Jorge E....Read More

The Issue: Although Canada has a relatively good Universal Healthcare program, this program is being eroded directly as a consequence of the high price of drugs and medicines used to treat patients. The Canadian Federal government has made a promise to put in place a National Pharmacare program that aligns with the goals of our...Read More

Thanks to our Friends Dr. Rob Rutledge and Dr. Timothy Walker for putting together this unique, over the internet ‘Skills for Healing’ workshop. What: The ‘Skills for Healing’ blood cancer day-long seminar / webcast. Learn about integrative medicine (combining conventional care with ways to empower body, mind and spirit), mindfulness-based stress reduction, cognitive reframing, meditation,...Read More