Thank you very much for taking the time to complete the survey! Importance of this Research This research is important because it helps to further our understanding of the patient experience in terms of quality of life while undergoing treatment for CML, and may help to create or refine programs and/or treatment plans to enhance...Read More
Thank you for taking the time to take our survey, Generic Imatinib Mesylate – The CML Patient’s Experience. Your voice will be added to all the other voices that took the time to share their experience. Please stay tuned for updates and future plans and actions based on the results of this survey. Feel free...Read More
The Chronic Myelogenous Leukemia (CML) Society of Canada is pleased to provide open access to the paper, “Treating Chronic Myeloid Leukemia – Improving Management Through Understanding of the Patient Experience”. The paper is written by Cheryl-Anne Simoneau, BA, who is the president and chief executive officer of the Chronic Myeloid Leukemia Society of Canada. Writing and editorial support...Read More
The majority of CML patients in Canada today are treated with oral tyrosine kinase inhibitors (TKI’s). There are currently (2015) seven TKI’s approved by health Canada for the treatment of CML patients in Canada. Click on the links below to learn the approved indications for the drugs use in CML and, in some cases, in...Read More
10/12/20: Patient group takes fight for access to cystic fibrosis medicines to the UN Human Rights Council Today is International Human Rights Day, the anniversary of the day the United Nations General Assembly adopted, in 1948, the Universal Declaration of Human Rights (UDHR). The UDHR is a milestone document that proclaims the inalienable rights which...Read More
The CML Society of Canada is happy to announce that we have partnered with many CML Patient Advocate groups around the world with the help of The Max Foundation to help bring greater awareness of the importance of PCR (Polymerase Chain Reaction) testing in CML. The “What is MY PCR?” campaign aims to increase awareness of the...Read More
The CML Society of Canada is very pleased to recognize the work of the Province of Ontario for prioritizing equitable access to treatments for CML patients and their treating physicians. We certainly hope that the news spreads so that other Provinces can join in. Emerging information in CML treatment highlights the critical need for patients...Read More
Quality of Life II survey – The CML Society of Canada presented very preliminary findings from our Quality of Life II survey at the recent European School of Hematology (ESH) conference. The poster was titled “Quality of Life Study II, The Journey of CML & Disease Management Through the Eyes of Patients” Authors: Cheryl-Anne Simoneau,...Read More
In 2008, The CML Society of Canada came up with a great idea. What if we had a special day to raise awareness about all the wonderful discoveries that took place that drastically changed the course of this once always nearly fatal disease. We thought if more of the world would know about it, then...Read More
This is a report filed by our President, Mrs. Cheryl-Anne Simoneau from the Philadelphia Chromosome Conference. A conference celebrating the 50th anniverary of the discovery of the Philadelphia Chromosome. Reported from Philadelphia. The conference was supported by a variety of sponsors which included the Fox Chase Cancer centre. Well I guess I am a geek...Read More
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